Group_Member (Date/Time_Posted)
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Age_Today
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Diagnosed_Age
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What_was_the_Diagnosis
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Recovery_Age
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Interventions____________________
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Lab_Tests______________________
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Comments______________________
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Child_Name
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Parents_Name
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JWhite2372@a... (Sat Jun 10, 2000 12:38pm)
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5 1/2
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2 1/2
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PDD Re-diagnosed at 3.1 Mild-Moderate Autism
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Recovered gradually, primarily by 4 1/2
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Did ABA for 2 years up to 50 hrs/wk incl preschool w/shadow
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Now 5 1/2 and indistinguishable
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Connor
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KBC2700@a... (Thu Jun 8, 2000 1:55pm)
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5 yrs 6months
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3 years
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Mild to Moderate Autism
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4 yrs
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Special Ed - includes Speech Therapy, auditory processing B6/Magnesium ProbioticClaritin/ZyrtecDiflucan for yeastZovirax for EBVMSM Amino Acid supplement Multivitamin
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CDSAAmino Acid TestsUrine yeast testImmune PanelViral PanelHeavy Metal Panel Food and Inhalent Allergy PanelsSolvents and Chemical PanelLumbar Puncture
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No vaccines given after age 12 months. I think this is critical for many of our kids not to have setbacks.
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Ariana Coyne
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amterry@a... (Thu Jun 8, 2000 1:17pm)
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4
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2-1/2
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PDD/Autistic Spectrum Disorder
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Approx. 3-1/2 yrs. (still ongoing...)
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GFCF Diet Secretin Intensive 1:1 ABA - Home Program combined with full-time school ABA program B6/Magnesium (Super Nu Thera vitamins) Speech Therapy, Oral-Motor therapy 3-4 times/wk Efalex Focus (EFA supplements) Homeopathic (wet) remedies
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Immune Panel, IgG Blood test for gluten/casein peptides, tests of pancreatic and liver function, Serum Metals, Elemental Hair Analysis
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bradmidd@a... (Sat Jun 10, 2000 5:47am)
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3.9
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2.1
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Early testing and continued testing afterwards. Immune markers out of the normal range, antibodies to myelin basic protein, and elevated yeast in gut. Initially, our large university diagnostic center in Atlanta gave her the dubious honor of being the
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Making steady constant progress
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Diet: Strict gluten and casein free (currently trying to eliminate corn) Receives ABA therapy; for first year, received 20-25 hours twice a day six days/week, recently removed her from her school to do 40 hours per week in the home mon-fri. vitamins and
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Harper
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Brad & Jenny Middlebrook
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gbaxter@s... (Sat Jun 10, 2000 7:34am)
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7.8
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3.5
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Autism
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first grade
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Diet: Gluten/Casein free since age 3.8 Supplements: Super Nu-Thera, Calcium Carbonate (Tums), GNC multi-vitamin, Evening Primrose oil, Selenium, Zinc, Educational intervention: ABA initially at 40 hours per week graduallydecreasing over a three year perio
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Matthew has just completed the first grade without any aids or supports. He took the California Achievement Test at the end of the first grade scoring the following: Total Reading 96th percentile, Total Language 95th percentile, Total Math 90th percenti
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Matthew
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Gary Baxter
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jhmoore@t... (Tue Jun 13, 2000 4:50pm)
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We have about another year too go. My son Michael is doing extremely well.
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Michael
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Jim & Helyn Moore
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leslim@b... (Mon Jun 12, 2000 9:33am)
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3.10
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22 months
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moderate/severe autism
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Lost autism label at 3.6 y.o based on CARS and Brigance.
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Supplements: DMG Educational intervention: 25-30 hours per week of ABA, beginning at 2.2 y.o. Therapy: OT 2x/week, PT 1x/week, SLP 1x/week, integrated daycare (now preK) with typical kids and occasional aide
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gluten/casein (negative), Fragile X, vaccine titres, immune Ig series, organic acid test
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Soon to be evaluated with other standardized tests. Expected
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Connor
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lesli mitchell
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moira@i... (Sat Jun 10, 2000 1:07pm)
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Larry has recovered to a great extent but not totally recovered. He is a successful Irish dancer and is indistinguishable in many settings. He must be kept on a very strict diet.
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Larry
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Mary
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rl@i... (Thu Jun 15, 2000 4:04am)
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7
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5-1/2
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Asperger's Syndrome
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He just finished first grade, fully mainstreamed, working at grade level.
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biomedical interventions; He's still getting OT and speech, and needed some help last year from an aide for writing and spelling. fAbout 6 months after he was diagnosed, ollow-up sessions with dealing with behaviors at home and school.
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He did so well that we are going to try to fade the aide next year. In many situations I think he is indistinguishable. But I wouldn't call him typical. He still has trouble with appropriate social interactions. He wants to be with kids, but has trouble w
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Jean in NC
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Aebbok1@a... (Sat Jun 10, 2000 7:57pm)
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5
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12-15 months
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1st pediatric neurologist-autism ; 2nd pediatric neurologist-PDD
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4 years and 10 months.
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OT therapy through age 3 1/2; Speech therapy off and on ; Most important therapy: ABA ; Vitamins: I use
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Fragile X; Sleeping EEG
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daughter
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JenBierce@a... (Thu Jun 8, 2000 3:24pm)
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4.7 yrs
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2.4 yrs
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PDD-NOS with autistic tendencies
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4.3 yrs
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Intensive ABA MSM Digestive Enzymes Transfer Factor and/or Colostrum Homeopathy Currently getting speech therapy for poor articulation
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He will be exempted from any further vaccinations and we will continue with only homeopathy. We also avoid antibiotics.
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John-Paul
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MMous12905@a... (Sat Jun 10, 2000 11:19am)
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3.8
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PDD. A second neuropsychologist confirmed this a couple months later, but said the criteria more closely matched autism.
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This is a tough one. We had our initial ABA workshop a month into the gluten-free die. The consultant we hired removed the label, but he noted delays. Shortly after this workshop we noticed a regression, and, eventually, more foods were pulled. Meanwhil
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social skills OT and therapist-led playgroups physical therapy. Biomedical Interventions: Very strict diet, thyroid replacement hormones, vitamins and homeopathy. We did nystatin, but, in retrospect, I think it was a big mistake.
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Angela
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Patricia
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carmen.sargent@c... (Thu Jun 8, 2000 1:26pm)
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almost four year old
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a regular nursery school with a shadow
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Our son is indistinguishable from his peers in a crowd. He is a very sweet boy with no behaviors, but in the confines of our home, I see he is a little weird.
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Carmen Sargent
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jfrrmr19@e... (Sun Jun 11, 2000 6:27pm)
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2.6
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mild/mod ASD, also mod MR
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ABA at 2.9 Tried hard to achieve 30 hrs/wk 1:1
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Doing great, but not recovered, in my view... Great jnt attn, language and imagination, etc., but has some minor OCD issues (getting stuck on topics). Moreover, he needs to ntellectualize *difficult* social encounters. And, while able to work through t
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John Rae, Rebecca Ryan
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kljsharon@f... (Thu Jun 15, 2000 7:44am)
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3 years 10 months
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22 months
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PDD/Autistic spectrum
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3 years 4 months, he lost all labels but Language Delay
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enrolled in a Language Preschool for 20 hours per week, and ABA for 21 hours per week. six hoursper week of ABA, and this summer is attending a private preschool WITH NO ASSISTANCE.
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he is pretty darn close to indistinguishable and getting closer every day.....While he still needs some fine tuning here and there....other than a language delay he is pretty indistinguishable from his peers.....
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Dalton
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Karen Jaggers
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lclodfel@i... (Fri Jun 9, 2000 6:42am)
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5 yrs 6 months
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2 yrs 4 months
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Autism
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lost labeling criteria at 4 yrs 7 months; indistinguishable from peers except for occasional grammar/speech error 5 yrs 4 months.
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- treated by Dr. Michael Goldberg (a description of his approach can be found at www.neuroimmunedr.com , it involves treating the underlying neuroimmune disorder. For our son it included a special diet (no dairy, whole grains, chocolate, or red berries),
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L. Clodfelter
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niliea@p... (Fri Jun 9, 2000 3:47pm)
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5 yo
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2.9 yo
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Autistic Spectrum Disorder
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4 yrs 4month* This was when he was officially undiagnosed by the same doctor who originally diagnosed him. I feel that he came out of his autism within the first year of starting the diet and yeast therapy.
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Special Ed Speech Therapy; GFCFYF Diet; Nystatin; DMSA Mercury chelation; Many supplements -too many to list; Auditory Integration Therapy; DAN! protocol; Food Allergy elimination/Rotation diet
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Casein/Gluten Antibody Test-Dr. Cade University of Florida; CDSA-Great Smokies & Kaiser; Blood elemental-toxic elements test Great Smokies; Organic Acid Test-Metamatrix; Hair Analysis-Doctor's Data; Post Provocative Toxic metal urine analysis-Doctor's Dat
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kwandy
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susan_bourgeois@h... (Mon Jun 19, 2000 6:56pm)
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4 yrs 3 months
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2 yrs 1 month
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Autism
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4 yrs 1 month
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Lovaas replication site from age 2 yrs 10 months until age 4 yrs 1 month (anywhere from 20 - 30 hours per week); speech therapy 2 hours per week from age 2 yrs 9 months to age 4 yrs 1 month; special ed preschool for 4 months and then typical preschool f
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Christopher
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Susan Bourgeois
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tjsweeney@a... (Thu Jun 8, 2000 6:41pm)
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We started the diet in October and saw immediate results.
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My son is now 5 and 1/2 and on his way to recovery. His language took off and the most noticeable was his interaction skills. I really felt we were getting close to a recovery. We entered spring doing wonderful then the allergies set in and we had a ma
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Tim and Jill Sweeney
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virgwid@a... (Thu Jun 8, 2000 11:17am )
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7
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3 1/2
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Moderate/severe autism
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around 51/2 or so
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ABA, speech, supernuthera, no nutrasweet, the internet, getting him the h.... away from special ed, public schools, complete morons, etc.
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Logan
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Virg
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ryankd@e... (Fri Jan 19, 2001 2:48pm)
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3y 8m (female)
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23 months
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PDD-NOS with mild autistic tendencies
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3y 3m (no longer tested on GARS or CARS scales and tested
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ABA-intensive, OT-starting at 24 months, efalex / efamol (see www.efamol.com ), reduced dairy diet, one dose of secretin (gaspretin )
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Urine Organic Acids, Yeast Stool Test, Fatty Acid Profile, Thyroid studies
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...received up to 40 hours per week of the Lovaas-style of ABA ..
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Lindsay
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Kim
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renee1dat 1-29-2001
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7
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4
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PDD-NOS at age 4, Sensory Integrative Dysfunction at age 2
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6- complete recovery after removing gluten and other food allergens and vitamin supplementation, 3 partial recovery as casein was removed at 28 months
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Senory Integration therapy, Speech Therapy, Occupational Therapy, GFCF Diet, Removal of other food allergens, Super Nu-Thera, Digestive enzymes
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Fragile X, EEG, MRI, Allergy testing
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Of all interventions the GFCF Diet and removal of other food allergens along with vitamin B6 and magnesium, specifically through Super Nu- Thera have been the most effective for us.
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Katelyn
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Renee Schlotzhauer
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epickwick@n...(Thu Feb 1, 2001 4:29am)
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4 yrs 10 months
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3 years 10 months
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PDD-nos, Hyperlexia
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4 yrs 10 month
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PPI Classroom, Auditory Integration Therapy, GFCF Diet, Supra NuThera, Occupational Therapy, Speech and Language ( Private 2x wk, In PPI 2 x wk, Pragmatics Therapy 1 x wk, Group Therapy), Sensory Integration Therapy
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Yeast Stool Test, Hair Analysis, Blood Test, Urinalysis
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PPI is for Pre-Primary Intervention.
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Austin
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Evelyn
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